Jamestown High School 2008 graduate Trazina Brewer's 22-month-old son Logan Adams was diagnosed with aplastic anemia in December of 2011.
The illness is a very serious condition that requires constant monitoring and frequent admissions into Buffalo Children's Hospital for Logan. However, every treatment thus far has been temporary, and he will eventually require a bone marrow transplant.
According to the Aplastic Anemia and MDS International Foundation website, aplastic anemia is a disease of the bone marrow. It happens when the bone marrow stops making enough red blood cells, white blood cells and platelets for the body. People with severe or very severe aplastic anemia are at risk for life-threatening infections or bleeding.
Pictured are Logan Adams and his mother, Trazina Brewer. Logan was diagnosed with aplastic anemia in December of 2011.
"Trazina had noticed this rash on his back, so she mentioned it to the doctor during a regular check-up," said Logan's great-grandmother Patricia Dake. "It turned out that it wasn't just a rash, it was petechiae, which is bleeding capillaries under the skin. They did some tests to find Logan had a low platelet count, so the doctor recommended bringing him to Buffalo Children's Hospital for two weeks. At first they thought it might be the autoimmune disease called ITP (Idiopathic thrombocytopenic purpura). Then they considered Evans syndrome. But, all they could do was try to get his platelet count up as high as they could so they could release him."
Until Logan receives the bone marrow transplant he will continue to experience the debilitating symptoms associated with the condition.
"When they finally made the diagnosis I knew that the disease was fatal, but I just realized that we're only temporarily treating him," said Dake. "We've had so many emergency trips to the hospital because his body is destroying the platelets. They tested for a donor for the transplant, but there wasn't anyone with enough similarities. So, they are trying to keep him alive until Trazina, who is expecting, has the baby. Then they can use the T-cells from the baby's umbilical cord. When they put those cells into Logan, the cells will regenerate production of bone marrow to save his life. But, in the meantime he has to go on chemotherapy to kill the antibodies that are killing his platelets."
However, Dake has hope. That's why she created the Logan's Run softball tournament and Logan's Dice Run benefit. Each event will raise funds to help give Logan a healthy future.
"Logan is handling all this better than we are, because he doesn't know he is sick," said Dake. "He is in all this pain, and he doesn't know why; he doesn't know that we have to do this to fix him. It's been horrible for us to have to stand by and listen to his screams. We know it's for the best, but it's still very hurtful. And, Trazina can't work while he is in this condition because he has to be watched every minute. I've given everything I have, and his mother can't even pay her electric bill because she has to pay for gas to get Logan to the doctor. But, we do have hope."
Logan's Run softball tournament is scheduled from 9 a.m. to 9 p.m. on Saturday, Sept. 15, at Bergman Park. The event will also feature children's activities and refreshments. Registration is currently open, and is $100 per team. Call Sean at 490-2750 for more information.
Logan's Dice Run registration begins at 8 a.m. on Sunday, Sept. 30, at The Pad on Route 394 in Kennedy. Admission for single-riders is $15 and $25 for double-riders. Riders will leave from The Pad at 11 a.m. The benefit continues from 2 p.m. to 11 p.m. and includes a $10 donation for a meal, a 50/50 raffle, Chinese auction, prizes and several live bands. The bands scheduled to play at the benefit include: Big Leg Emma, Total Chaos and Headbanger's Ball.
"Participating in benefits like this help people to become aware of the disease, and the ramifications of it," said Dake. "It's also heartwarming to see the caring of other people. That gives us hope, and it gives us strength. They can't make him better, but they can help us get to the point where we can get him better."